Fieldworkers, ethics and the medical research process in developing countries. (360G-Wellcome-080546_Z_06_B)

The research project proposed is an ethnographic examination of the role of medical research fieldworkers in the ethics debate, with a particular focus on HIV research. The aims are to examine the role played by fieldworkers in the delivery of ethical research and to inform the debate with a fresh perspective from the field. There are substantial limitations to the current bioethical research guidelines, which are challenged when applied to developing countries. These limitations have been highlighted by the ongoing ethics debate of medical research in developing countries and in particular in the field of HIV/AIDs. The current debate represents a largely theoretical and academic discussion of ethics, rather than the challenges and ethical dilemmas faced at the point at which the data are collected or produced. In recognition of the limitations of theoretical examination, social scientists emphasise a focus on the 'everyday' practicalities of conducting research in order to improve the existing guidelines. Examining the role of the fieldworker has emerged as a key component in gaining a greater understanding the ethics of medical research. As the 'intermediaries' in the research process they occupy a role between the Principal investigators and the participants. As fieldworkers are at the frontline of research, they are also at the point where potential ethical challenges are most likely to occur.