Impact of lay-controlled digital social networks on health and health systems. (360G-Wellcome-104333_Z_14_Z)

The ability to access and disseminate information through digital communication networks (e.g. internet, mobile phones) is changing societal activities including national politics and accountability. Using digital communication, lay-controlled networks with particular health interests are becoming powerful political lobby groups. We seek to describe these networks, the impact they have and how this varies. Initial scoping searches of published literature will establish the extent to which they a re documented and seek evidence of their prevalence and characteristics. We will then undertake case studies of 3-5 networks, exploring their structure, function, participants, impact, how they came into being and sustain themselves, and what changed as they matured. Case studies will draw on literature, on line material and key-informant interviews. This exploratory study builds on the research teams theoretical work and is complimented by secured funding for research team visits. Lay-controlle d networked communication is likely to increase as the public seek to use it to improve their situation. Those responsible for health care provision will need to understand the potential impact and how to respond to enhance benefit and limit harm, whilst respecting individual autonomy. Impact may be greater in countries where accountability of health providers and associated governance is weak.