Returning research results: a Northern European Research Network (360G-Wellcome-213081_Z_18_Z)
The generation of (clinically significant) research results in biobanking and other research activities raises questions about return of these findings, such as: should researchers return this information to participants, and if so, what, when and how should it be returned? While some bioethicists argue that researchers have a duty to return some clinically significant results, in practice this rarely occurs. A number of biobanks and cohort studies are currently considering returning a limited number of results to participants while others are engaging in selective (genotype and phenotype driven) recruitment practices, which may indirectly reveal health information to the selected participants. We are applying for funding to create a network of Northern European researchers who are interested in the ethical and practical issues raised by returning results and selective recruitment practices. The network will meet four times over a two year period to debate these issues and provide practical and ethical solutions to the challenges generated by the return of results. In addition to network meetings, we will run an international symposium, coedit a special issue of a journal on this topic and generate a larger grant application to undertake normative and empirical research on the return of results.
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Grant Details
Amount Awarded | 29975 |
Applicant Surname | Hallowell |
Approval Committee | Humanities and Social Science, Small Grants Committee |
Award Date | 2018-06-27T00:00:00+00:00 |
Financial Year | 2017/18 |
Grant Programme: Title | Small grant in H&SS |
Internal ID | 213081/Z/18/Z |
Lead Applicant | Dr Nina Hallowell |
Partnership Value | 29975 |
Planned Dates: End Date | 2021-09-30T00:00:00+00:00 |
Planned Dates: Start Date | 2018-10-01T00:00:00+00:00 |
Recipient Org: Country | United Kingdom |
Region | South East |