Developing future research agendas on the socioethical impact of genomics through interdisciplinary live data-sharing (360G-Wellcome-219426_Z_19_Z)

This project will develop a forum for interdisciplinary collaborations and collective imagination on the socioethical implications of genomics, using live data-sharing as a spring board to theoretical and conceptual enhancement, and future research agenda development. The project will bring together academics, researchers, clinicians, policy-makers and doctoral students working on, or alongside, the socioethical implications of genomics, for four focused workshops over 24 months, informed by the input of a patient/public advisory group. These workshops will provide otherwise non-existent opportunities for collaboration through the presentation and collective curation of current research data and emergent analyses, presented along axes of core cross-cutting themes (e.g. risk/genetic responsibility). The workshops will highlight areas of interdisciplinary resonance for further development, with the ultimate goal of enhancing the theoretical robustness and transferability of underlying concepts, and illuminating pathways for future research. It is anticipated that the emergent network of researchers/academics/clinicians/policy-makers interested in socioethical genomics will continue beyond the lifetime of the project, providing an open space for sustained interdisciplinary data-sharing and collaborative analysis, to ultimately enhance the quality and robustness of research in this area, as well as highlighting new directions for the translation of research into policy and practice.