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Dealing with uncertainty in prenatal genomics: an international comparison study (360G-Wellcome-211288_Z_18_Z)

Technological advances in the field of prenatal testing mean that we can now diagnose more genetic conditions in the fetus than ever before. Whilst these new tests have created exciting opportunities for comprehensive prenatal diagnosis to inform pregnancy management, the ever increasing amount of genetic information that can be obtained raises ethical and counselling challenges associated with uncertain and unknown results. Whilst some prospective parents desire as much information as possible, potential uncertainty may raise anxiety and complicate decision-making. The aim of this research is to conduct a pilot study in preparation for a subsequent international comparative study. The objectives of this pilot study are to 1. convene a workshop of experts to identify the most pressing questions relating to uncertainty in prenatal genomics and how best each might be tackled; 2. develop and pilot the research tools selected to address those questions e.g. case studies, measure of uncertainty, discreet choice experiment; in-depth interviews; 3. Building on the findings from the pilot, formulate a comprehensive research plan and develop a team for a subsequent large-scale international study.

£26,758

07 Mar 2018

Grant details
Amount Awarded 26758
Applicant Surname Lewis
Approval Committee Humanities and Social Science, Small Grants Committee
Award Date 2018-03-07T00:00:00+00:00
Financial Year 2017/18
Grant Programme: Title Small grant in H&SS
Internal ID 211288/Z/18/Z
Lead Applicant Dr Celine Lewis
Planned Dates: End Date 2019-09-30T00:00:00+00:00
Planned Dates: Start Date 2018-07-02T00:00:00+00:00
Recipient Org: Country United Kingdom
Region Greater London
additional_data_added True
id_and_name ["Great Ormond Street Hospital for Children", "360G-Wellcome-ORG:Great-Ormond-Street-Hospital-for-Children"]
Additional data added by GrantNav