Health research: Working in partnership with people with intellectual disabilities (360G-Wellcome-212064_Z_18_Z)

People with intellectual disabilities (ID) experience health inequalities, are frequently excluded from research and their views are rarely captured in the research process. There is a need to develop robust public engagement methods with this marginalised group to improve quality and diversity in ID health research and to challenge attitudinal barriers that result in the exclusion of people with ID either as subjects or participants in studies. The project will develop an adapted citizens’ jury method, empowering people with ID to deliberate on conceptual and practical issues in ID health research. The specific question for deliberation in the jury (people with ID) will be decided by jury members throughout the capacity building stage of the project. The jury will call expert witnesses to give (accessible) evidence and will undertake supported/informed deliberation on the jury question. At the end of the process they will produce a consensus report with recommendations for the ID research community. Jury members and the project team will lead a knowledge exchange session at the IASSIDD global congress which brings the global ID research community to Glasgow in 2019. The project team have combined expertise in developing innovative, effective communication methods and conducting ID research.