Capacity, consent and autonomy: health research participation for people with a learning disability (360G-Wellcome-219754_Z_19_A)

This project aims to consolidate work that has been happening across the globe, creating an introductory curriculum on health research and, pivotally, engaging with and representing key concepts of capacity, consent and autonomy making them accessible objects of knowledge and discussion to this population. Without further capacity building to support them to understand what research is, how it is designed, funded, reviewed and carried out, they will be unable to engage with discussions of capacity, consent and autonomy which are the conceptual foundations of their exclusion. They will also be unable to understand where they can engage with research and affect change in it. By the end of this project we will have: - Appointed an expert by experience to co- produce the project collaboratively with me. - Reached out to all interested parties to share their experiences of, and resources for, engaging people with an intellectual disability about health research and key project concepts of capacity, consent and autonomy. - Consolidated the resources into one package to be delivered, engaged with and evaluated in a series of workshops. - Led a series of workshops and given life/visual representation to the reflections of the participants on capacity, consent and autonomy through creative methods. - Identified target audiences and key knowledge transfer locations to host resources. - Created guidance for the delivery of the resources. - Launched the resources, delivery guidance and creative representations, further widening the reach of the resources & seeking feedback.