SWAN UK (syndromes without a name) England (360G-tnlcomfund-0031037169)

£312,634

The aim of this England wide development project is to provide support for 3,500 families with children who have undiagnosed genetic conditions. Most of these children have physical and/or learning disabilities and many have severe and complex medical needs with as many as 50 per cent of children having genetic tests through the NHS not receiving a definite diagnosis for their condition.

Where is this data from?

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Grant Details

Amount Awarded 312634
Award Date 2016-07-13T00:00:00+00:00
Grant Programme: Code RC5
Grant Programme: Title Reaching Communities
Last Modified 2017-07-18T15:57:18.2800000Z
Planned Dates: Duration (months) 36
Planned Dates: End Date 2019-09-01T00:00:00+00:00
Planned Dates: Start Date 2016-09-01T00:00:00+00:00
Recipient Org: Charity Number 1114195
Recipient Org: Company Number 5772999
Recipient Org: Location: Geographic Code E05000369
Recipient Org: Location: Geographic Code E09000019
Recipient Org: Location: Name Canonbury
Recipient Org: Location: Name Islington
Recipient Org: Organisation Type Charity : Registered Charity