All-through Support (360G-tnlcomfund-0045367449)

£480,130

The funding will be used by the group to fund expanded and enhanced support activities for children and families affected by Duchene muscular dystrophy. It will support parents through diagnosis by employing a nurse/support worker who will work with specialist clinical centres across England to offer immediate support to every family diagnosed without them needing to ask for help. Help families to make informed decisions by offering regional science workshops and online shows to help them understand the illness as well support through mentoring and 1:1 support for young people and their families. The group will also look to enhance it support for end of life care and bereavement for those families experiencing loss as a result of the illness.

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Grant Details

Amount Awarded 480130
Award Date 2021-09-01T00:00:00+00:00
Grant Programme: Code RCEW1
Grant Programme: Title RC England Wide
Last Modified 2022-04-27T00:00:00+00:00
Planned Date: Duration(months) 24
Planned Dates: End Date 2023-10-26T00:00:00+00:00
Planned Dates: Start Date 2021-10-27T00:00:00+00:00
Recipient Org: Charity Number 1101971
Recipient Org: Company Number 4899036
Recipient Org: Location: Geographic Code E05009378
Recipient Org: Location: Geographic Code E09000012
Recipient Org: Location: Geographic Code E14000721
Recipient Org: Location: Geographic Code Type LA
Recipient Org: Location: Geographic Code Type WD
Recipient Org: Location: Geographic Code Type WPC
Recipient Org: Location: Name Hackney
Recipient Org: Location: Name Hackney South and Shoreditch
Recipient Org: Location: Name Hoxton West
Recipient Org: Organisation Type Not-for-profit company