Supporting the leukodystrophy community post-COVID (360G-tnlcomfund-0045412238)

This funding will support Alex The Leukodystrophy Charity (ATLC) to develop and implement new projects identified as a priority by their beneficiaries sharing latest information advice and guidance and enhancing the wellbeing of the genetic leukodystrophy community. ATLC provides support and information to people affected by a genetic leukodystrophy. Leukodystrophies are a group of rare progressive metabolic genetic diseases that affect the brain spinal cord and often the peripheral nerves. The funding will enable more patients families and carers to access vital support and information connect patients and families to others living with similar disorders raise awareness and improve public and professional education through events and campaigns and help to advance medical research to find better treatments enable early diagnosis and increase life expectancy.