Mt Story My Way (360G-CambsCF-A691812)

to hold a pilot workshop with YP with rare diseases to vocalise their needs without words to create a blueprint that is meaningful to them and will shape future organisation strategy

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Grant Details

Amount Applied For 4000
Amount Awarded 4000
Award Date 2023-06-14T00:00:00+00:00
Beneficiary Location: Country Code GB
Beneficiary Location: Geographic Code E01018293
Beneficiary Location: Geographic Code Type LSOA
Beneficiary Location: Name South Cambridgeshire 012B
Grant Programme: Code Summer 2023
Grant Programme: Title NHS Health Inequalities Challenge Prize
Last Modified 2023-12-08T00:00:00+00:00
Planned Dates: Duration (months) 3
Planned Dates: End Date 2023-09-01T00:00:00+00:00
Planned Dates: Start Date 2023-06-01T00:00:00+00:00
Recipient Org: Charity Number 1166365
Recipient Org: Description To improve outcomes for those living with rare conditions and their families by building a network, support, advice and information for them and the professionals who work with them. We strive to educate relevant professionals and the public through a range of events and promote and publish research on rare diseases to increase understanding and empathy and encourage investment in better diagnosis, support, care and treatment for those affected. We support families affected by rare diseases (RD) through our 'Unique Feet'(UF) community group, where children, young people, young adults and their families feel connected, understood and supported, reducing the isolation that stems from being 'rare'. We provide local, accessible, inclusive activities and services to meet their needs.
Recipient Org: Web Address https://www.camraredisease.org