Improving care and support for patients living with dementia and their carers (360G-EssexCF-A504945)
Funding Organization
£4,000
Recipient Organization
To help improve care and support for patients living with dementia and their carers
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Grant Details
| Amount Applied For | 9522 |
| Amount Awarded | 4000 |
| Award Date | 2019-05-17T00:00:00+00:00 |
| Beneficiary Location: Country Code | GB |
| Beneficiary Location: Geographic Code | E01021768 |
| Beneficiary Location: Geographic Code Type | LSOA |
| Beneficiary Location: Name | Epping Forest 001A |
| Grant Programme: Code | 2018/19 |
| Grant Programme: Title | Multiple Funding |
| Impact Category | Promote reduction of isolation and disadvantage and access to local services |
| Last Modified | 2021-04-29T00:00:00+00:00 |
| Planned Dates: Duration (months) | 11 |
| Planned Dates: End Date | 2020-03-31T00:00:00+00:00 |
| Planned Dates: Start Date | 2019-04-01T00:00:00+00:00 |
| Primary age group | Seniors (65+) |
| Primary beneficiary | Local residents |
| Primary ethnicity | All Ethnicities |
| Primary issue | Caring responsibilities |
| Recipient Org: Charity Number | 1063631 |
| Recipient Org: Company Number | 02951374 |
| Recipient Org: Description | We are the leading provider of specialist palliative care for residents of West Essex (Epping Forest, Harlow and Uttlesford) and East Hertfordshire. From our hospice in Hastingwood, which was set up in 1990 by the local community, we currently support over 1,270 patients and families who live with a terminal or life-limiting illness. St Clare’s dedicated staff team includes doctors, nurses, health care assistants, physiotherapists, occupational therapists, complementary therapists, social workers, administrators and housekeepers. We offer palliative care to people over the age of 18, no matter their condition. Patients have illnesses like cancer, heart, lung and kidney diseases and also neurological conditions such as motor neurone disease and end stage dementia. We aim to meet the physical, medical, emotional, social and spiritual needs of our patients from diagnosis through all stages of their illness to choosing how they wish to die. We also support each patient’s relatives, friends and carers as they face one of the most difficult journeys in life. Wendy, a patient, told us: ‘At St Clare, you talk to people about things that you can’t, or don’t, want to talk to your family about. You get really involved and can really let yourself go. It is all about helping you to live. My husband has met other carers when he drops me off. They have formed a sort of informal support group. Even just chatting and passing on tips, like how to apply for a disability card, is really helpful for the carers.’ Local people value our services highly. Over 500 volunteers give over 10,000 hours of their time at the hospice each year and our local community does much to contribute towards the funds we need to keep our hospice running. Our services in more detail:- Inpatient Unit (IPU): Our Inpatient Unit cares for over 200 people each year in eight purpose-built en-suite homely bedrooms with access to a private patio and our gardens. It is a calm and positive place with access to 24-hour care and a range of professional support. People come to us for different reasons - not always to spend their last days here. Patients may need our help to get their symptoms under control, adjust their medication, or get a thorough needs assessment. The average stay last year was 10.6 days. Day Therapy: People with a restrictive illness want to be able to wash, dress, shop and cook for themselves - carry on with normal life as much as they possibly can. Our Day Therapy and Outpatients services are designed to help people maintain independence and preserve their dignity. The weekly Day Therapy timetable includes a physiotherapy group, a breathlessness group and Café Clare. St Clare in the community: Our Hospice at Home and Community Care teams provide a 24 hours a day, seven days a week service to more patients than ever before in the comfort of their own home. Our dedicated Community Palliative Care Team provides 24/7 nursing support, specialist advice, emotional and psychological support and rehabilitation. Working with GPs, District Nurses and social care colleagues we plan, deliver and respond to the needs of patients and families. Our staff teams also work together to help patients avoid unnecessary and distressing admissions to hospital. Patient and Family Support: As they face the most difficult time in their life, patients often need help to deal with emotional and practical issues like financial matters and how to talk to children about what is happening. Our staff team includes social workers, a Chaplain and specially trained volunteers. We offer support groups and drop-in sessions to enable patients and families to cope, plan for the future and build friendships and support networks. Our Children’s Bereavement Service works alongside our Adult Bereavement Service. Children of patients are able to access support from a dedicated, qualified child bereavement counsellor who can help them cope with the traumatic experience of losing their parent, grandparent or other relative. Our Compassionate Neighbours programme specifically aims to reduce loneliness and social isolation for people at the end of life in their own homes. Volunteers empower people to articulate and achieve their preferences for care, provide them with social support and enable them to remain part of their community wherever possible. The demand for St Clare’s services increases every year. In 2017-18: • we cared for 201 patients in our Inpatient Unit; • our Occupational Therapists and Physiotherapy team made more than 920 face-to-face visits to patients and more than 700 supportive phone calls; • St Clare Clinical Nurse Specialists in Palliative Care delivered 962 episodes of care to patients, with over 1,000 referrals made to the service; • over 90% of patients cared for by our Hospice at Home team that died did so at home; • our Children, Young People and Family Bereavement service provided pre-and post-bereavement counselling and support to over 30 children, young people and their families. We currently aim to significantly improve our care and support for people living with dementia and those caring for them across West Essex. This will be achieved by improving the knowledge, skills and confidence of staff and volunteers to better support, care for and signpost patients and carers to relevant local dementia services, delivering a small-scale Namaste Care programme led by volunteers in people’s homes (including care homes) and improving our In-Patient Unit environment with dementia-friendly décor and equipment. Namaste is an internationally recognised programme using sensory-based techniques that provide comfort/support to people with advanced dementia. Our 2018-2021 strategy is based on four clear principles, all of which are specifically addressed by our new project. The principles are: 1. We will reach significantly more people who are facing death, dying and loss in our local communities; 2. We will support our communities to become more resilient, to support each other and to remain independent for as long as possible; 3. We will seek partnerships with other organisations to deliver better care for our patients; 4. We will grow as a strong, sustainable and effective organisation. and effective organisation. |
| Recipient Org: Web Address | http://www.stclarehospice.org.uk |