Grant to Batten Disease Family Association (360G-QuartetCF-A416942)

As requested by the donor towards support for individuals and families affected by Batten disease.

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Grant Details

Amount Applied For 100
Amount Awarded 100
Award Date 2016-07-29T00:00:00+00:00
Beneficiary Location: Country Code GB
Beneficiary Location: Geographic Code E07000085
Beneficiary Location: Geographic Code Type NMD
Beneficiary Location: Name East Hampshire
Grant Programme: Code DD-2016/2017
Grant Programme: Title Donor Directed
Impact Category Advance people's physical and mental health, wellbeing and safety
Last Modified 2016-08-04T00:00:00+00:00
Primary age group All Ages
Primary beneficiary People with physical disabilities
Primary ethnicity All Ethnicities
Primary issue Supporting family life
Recipient Org: Charity Number 1084908.0
Recipient Org: Description The Batten Disease Family Association (BDFA) is a national charity which aims to support families, raise awareness and facilitate research into the group of devastating neurodegenerative diseases commonly known as Batten disease. We are based in Hampshire but work with children, young people, families and professionals across the UK. We were in formed in 1998 with the help of SeeAbility and Contact-a-Family, by a small group of parents of children with Batten disease. We were granted Registered Charity status in 2001 and the work of the charity has continued to go from strength to strength.
Recipient Org: Web Address http://www.bdfa-uk.org.uk